After over 2 hours at the hospital last Thursday we have a new medication plan for Sara.
It was great to have Michael there. He asked all the right questions impartially in a way I'm not able to do. Basically it was explained to us that Sara's Crohns Disease is complex. Not only because it's a life time condition which her current medications are not controlling but also because of the actual position of inflammation which is where the small bowel meets the large bowel.
Over the last few weeks the doctor's have tested (through bloods) how the Imuran is being processed by her body. It's not good. Everything is going to her liver and not affecting her immune system.
Because you have Crohns all your life, it's important to keep some medications up our sleeves for future flare ups. So Sara was given 2 choices.
1. To continue on with her imuran but add an additional drug (used to treat gout) which redirects the Imuran into the correct pathways.
2. To have a weekly injection (which causes bad nausea) with a medication called methatryxin.
Sara picked Option 1, which we all agreed was the best thing to do. I know that REALLY it was because she didn't want an injection (or to be taught how to inject herself)! But also because she's already feeling nauseous, and we don't need to add to that.
By taking Option 1, it means that we absolutely eliminate Imuran from the mix of medications available. And if this works, it's the least intrusive method of controlling the Crohns.
Also it was felt to control her pain better, she should go back on the dreaded steroids. We are all really miserable about that but hope it helps with the pain.
So fingers crossed. After $150 spent at the chemist in a week, something has to work in our favour doesn't it?
YES!
ReplyDeleteFingers crossed for you all, as always xxx