The long saga of Sara's Crohns Disease continues.
Not sure where to start but basically on Saturday afternoon we ended up in emergency because Sara had a sore throat and a fever and couldn't tolerate her drinks.
You know you've been to emergency too many times when the nursing staff all remember you. Luckily Alex The Great looked after us and pretty soon after we arrived Sara was admitted, into the same ward and the next bed.
It was decided that Sara should be on bowel rest and nil by mouth again until she was feeling better. So in went the drip, 2 different types of antibiotics and loads of anti nausea and pain meds.
Yesterday it was decided that Sara could eat again. It was so exciting to watch her having her first sip of apple juice and the thought of never having to have another one of those evil drinks. When I came in before work this morning she looked fine. She'd had apple juice, custard and a piece of bread for breakfast. The doctors were optimistic and talked about coming home this evening.
Unfortunately there was a miscommunication. Sara should have started having one meal only and still drinking her osmolite drinks. This was a real set back, Sara had been celebrating not having to drink them again to be told she had to get down at least 5 cans.
I rang the nurse who is in charge of our IBD team and voiced my concern at the lack of communication, and the fact that nobody seemed to take Sara and her pain seriously. So since then we have discussed the next step in terms of managing her Crohns Disease. A drug called infliximab which is done by infusion. Sara has to have a chest xray and a test for tuberculosis. We are pretty sure based on her blood results that the Crohns is still active and not in remission.
As for food. Sara is not tolerating it very well. I was called urgently from work, had to drop everything because she had been vomiting uncontrollably. I am taking tomorrow off in the hope that I'll be able to bring her home.
Keep your fingers crossed for us guys
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