It has been a while since I last updated this blog and that's mostly because there has been little to say. Yes, we've been back to doctors both at the pain and the IBD clinic and yes medication has been changed and tweaked, but let's just say that apart from a few good weeks, Sara has felt no better.
It's starting to get me worried.
Now I know that I have to be positive for the family and Sara's sake, but that is very difficult when faced with a daughter who is just not improving. Even the doctors agree that while the blood results look ok (not the best, but not the worst) and the MRI is unremarkable (definitely no obstruction, only a small area of inflammation), the fact is that Sara feels terrible MOST of the time.
She's putting on a brave face and has made it to school most days. She's kept up with her work load and even showed some excitement in the 2 major works she has to complete, but I can see the toll it's taking. You shouldn't have to struggle and make such an effort to get through a day. It's just not right. Everyone agrees with me, but no one seems to have any answers.
Last week the doctors talked to us about possible surgery. A bowel resection and a couple of weeks in hospital. It's something we really have to consider, even if the chances of the Crohns disappearing forever are very small.
Nothing will happen this year, but maybe we will have to think about it for early 2013 in the hope that Sara can start feeling normal again.
At this time I just want to be excited about our upcoming holiday in December, and not have to worry about doctors, medication or surgery. We will go prepared with names of emergency specialist contacts and every possible medication we could need. Just hope that the 3 weeks in paradise provides more relief to Sara than the doctors seem to be able to at the moment.
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