Sara has been in hospital a week and while she's definitely much better, I don't really think we've achieved much in terms of managing her illness. She's on a whole cocktail of medications to mask her symptoms. Stuff to curb the nausea, strong pain killers, but nothing really to address the increasing inflammation in her body. My biggest fear is that we take her, (well a zonked out version of her) home, continue with this "not eating" regime and end up back in hospital in 2 -3 weeks time.
I don't need the results of the MRI to know that her condition has worsened and I don't need anyone else to tell me that studies have shown that not eating for 8 weeks really helps. Words are all very well, but you try not feeding your child for weeks without getting distressed.
The other thing I've been told this week, is that Sara is feeding off my stress. I freely admit to feeling stressed and out of control, but I wouldn't be feeling this way, if I wasn't already in a distressing situation. And on top of that I have a job to maintain, a family to run, meals to prepare. My daughter is in hospital. Of course I'm bloody stressed!
So we'll go home today and try to keep going as best we can. The plan is to be back here next Tuesday for the results of the MRI scan. And beyond that I have no idea what the future holds, but I'm pretty sure my stress levels will be rising.
This is one of those times in life where worrying isn't going to fix things. Fixing Sara is a process and sadly you need to go through the process to come out the other side. Excess worry may only delay the process through stress.
ReplyDeleteAs hard as it is try and have faith that you can arrive at the goal of sorting Sara's problem out.
I hope you guys have reached the point where the hardest part is over xox
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ReplyDeleteI'll keep the faith! Feeling better today and obviously having her home helps! x
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