Judy - Results (but why is she no better)

I've left it a while since I last posted, because to be honest I didn't know how to feel about the MRI and blood test results we received last Thursday. Of course I'm delighted that the inflammation in Sara's body seems to have reduced (down from 22 to 4.8) in less than 10 days. It's also great news that there is no obstruction or blockage in her bowel.

But why is it that she's not feeling any better?

Sara could not have been a better patient. She never argues or contradicts the doctors. She tells the truth about how she's feeling and heck she's not eaten for over 5 weeks, you couldn't ask for more. But I understand her frustration because when we see the doctors and she tells them that she is still in pain frequently and nauseous often, they pat her on the shoulder and say "but your blood results tell us another story. Your scan is almost normal apart from some minor inflammation". It's frustrating for me so I can only imagine how condescending it sounds to her.

So here's where I'm at with it all. I'm feeling very optimistic that the medication and "not eating" regime is helping to control the Crohns Disease. I'm hoping it won't be long before the outside of her body catches up and starts feeling better too.

I'm trying to keep things more normal. Well as normal as I can when I have a child governed by a osmolite shake she has to have 5 times a day. Yesterday we had a day in the city shopping. At least we were out and about! I bought a new dress, Ms 13 bought some horrible cardigan in Supre, but poor Sara only ended up buying a present for a friend.

We'll try something new next weekend, your suggestions are all welcome. Remember, they can't involve eating or anything that's too exhausting!